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Rank: Advanced Member  Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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hi, im still new to site and to all the pill mixes and having been on mtx and naproxen for a year, now been put on hydroxychloroquine and mtx with co-codomol and paracetomol thrown in,been told if that does not help with pain i have to go on mtx jags once week, my blood appears fine and was asked if i was depressed which i am not just tired,any one tried this lot i have a long way to go as yet when i read through others stories,this is the best help i have had on here,cant get nuse at all,my ot is the my best help,she comes through everytime for me.
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Rank: Advanced Member
Groups: Registered
Joined: 12/5/2009 Posts: 103
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Hi Dorothy,I'm on Hydroxy and MTX and it seems to be working for me at the moment.  I take two Hydroxy daily and 5mg of MTX once a week plus Folic acid.Havn't had much pain for quite a while now and havn't had the need to take other pain killers however I am experiencing some hair loss which is probably due to the MTX. I originally started on 15mg of MTX but came out in a rash so it was lowered to 7.5mg.When I saw the rheumy nurse a couple of weeks ago I mentioned the hair loss so the MTX dose was lowered again to the 5mg but I'm still seeing some hair loss. I know not everyone gets the hair loss,it varies from person to person.Did you have any side effects when you first started MTX? Brenda.x
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi there, I am on MTX too, I have been for years along with Hydrox, and Sulphasalazine, I too had some hair loss but it stabilised out after a time. I have my hair layered and it looks healthy enough. I'm on 15mg I have been on that dose since being diagnosed. I also had a rash but had to stop them for a week until the rash went and then re start at the lower dose and build up again. Hope you do well on your new tablets Dorothy and see a difference soon. Take care all. Lorna x
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 336
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Hello Dorothy I've been on 20mg Mtx for about five years and then had the Hydroxy added about three years ago it helped with the fatigue. I am still taking Naproxen with Tramadol and paracetamol. I hope it helps you in the same way.Brenda I also had problems with hair loss but it has settled. Glenys.
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Rank: Advanced Member  Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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thanks guys, my hair is fine i have a mane like a pony so would cry if i lost it,i do keep it long and layered though, i take 1000mg primrose oil every day for menopause and i try watching what i eat not easy,maybe it helps ??? i am on mtx 25mg week been year now feel ok on that and folic acid yep thats ok,had naproxen for year then stopped,tried sulphasalasine god that was bad took 2 days to show it didnt like me,and now trying hydroxy 200 x 2 day with the usuall paracetomol,co-codomol and the bottle of brandy(KIDDING), i get the rash,bruises feel sick and the cant be bothered mix with menopause not a good day, even the dog knows to leave me alone at times,i have got the dog to pull off socks and my trousers,he even gives me them back now,hes a staffy so it took time but i have a lot of that, it was amusing and new clothes every other week whoohoo!!!!!! i am so glad i took the plunge and joined i have learned soooo much and people listen and can give a straight and honest answer, brilliant.
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Rank: Advanced Member
Groups: Registered
Joined: 12/21/2009 Posts: 106 Location: cornwall
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hi dorothy
can i just ask --are you taking co-codamol and paracetamol? that sounds a bit odd as co codamol already has paracetamol inwith it.
i've been on naproxen for 2 years now along with hydroxychloroquinine/co codamol recently tried sulphasalzine --bad move--altho it did reduce the pain--waiting for next hosp appointment then will prob have MTX--like you very tired
altho poorly at the moment with tonsilitis so if that doesn't sort out soon things maybe put back
take care caz x
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Rank: Advanced Member  Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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hi carol poor you, yes i take both but not at the same time,i did question that mix with my gp and consulant and as long as i dont use paracetomol at the same time as co-cods i can use both i dont use paras if i can help it but i get such an itch when i use co-cods it drives me up the wall but they work the best, so they let me use both, i have to work it to suit how i am at the time,i do keep asking if my mix is still ok when i see my gp as i do blood every month and visit him 3-4 days later, so it is on my notes, i might push that one a bit more with him.thanks for that didnt really think about it till now,ive been doing it for over a year hope you feel better soon awful thing to have. must also say i am feeling good at the moment so hope mtx and hdroxy working,took a week so far so good,
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Rank: Advanced Member  Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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my moan of today,have been getting mega headaches since hydroxy and now told to cut back to one a day for a week and see gp again after that, did ask re== paracetomols and co-codomols, now only take co-codomols thanks for pointing that out carol,(how you feeling)also finally got r/nurse so getting answers now, why do i feel im annoying her ah well im not one for giving up,
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